AxD Book

Alexander Disease - A Guide for Patients and Families

Alexander Disease: A Guide for Patients and Families

This book offers a comprehensive overview of Alexander disease, a rare and devastating neurological disorder that often affects the white matter of the brain and spinal cord.

The first edition of “Alexander Disease: a Guide for Patients and Families” went to press in November 2017. This book can be purchased at

Appendix (pdf)

New information from November 2017 through August 2021 is summarized in the appendix.






La Enfermedad de Alexander: Una Guía para Pacientes y Familias (pdf)

Este libro ofrece un resumen comprensivo de la enfermedad de Alexander, un desorden neurológico raro y devastador que a menudo afecta la materia blanca del cerebro y la médula espinal. Descarga el libro gratis aquí.